Tuesday, January 26, 2010

May 2, 2010 - 8:30pm

For the most part Ali hasn't shown much energy today.  But as you can see in the picture she did get down to the play room and do some painting with her buddy Abby.  She didn't last long before she was laying down painting but it was good to see.  We hoped maybe she would improve on yesterday, but I guess it was about the same.  She did paint, play with bubbles a little bit and we watched some more youtube videos, but for the most part laid around and looked uncomfortable.  She did have quite a few visiters today which you could see that she liked.  Katie came back to visit again and immediately Ali wanted her to hold her again and just to be with her.  Her grandma Kate, Aunt Rebekah, (soon to officially be Uncle) Doug, Maddy and her sister Sydney were here too.  Dave also came by with their girls Abby and Ava.  When it was time for every one to go she really didn't want her sister to leave today :(
Grandma arrived yesterday who's help is greatly appreciated.  She will be staying at the house and chasing after Sydney for a while, taking to and from preschool, soccer practice, and I am sure making 100's of crafts! :)  If everything remains on schedule Ali should sleep for the next few hours and then be up from about midnight on.. :(
I had planned on maybe returning to work tomorrow (monday), but I am going to stay here atleast another day.  I wanted to be here to speak with Dr. Vo and the other doctors to see for sure what they are thinking about a timeline for the angiogram.  At one time it was a possibility to do on tuesday, I think with her blood pressure being down somewhat they might hold off again, but we'll get the official word tomorrow.

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