This morning has been a busy morning... Last night was a rough night... Last night Ali was very uncomfortable and rolled all over her bed - didn't sleep much, a few "naps" here and there.
This morning the doctors once again are making their rounds after the weekend. Here is what happened:
There was some confusion over the weekend whether or not we still needed a urine sample. We had thought the doctors had told us not to worry about it - the nurses still had it in the chart and would bring it up every shift change - along with continuing ear drops (for a ear infection she had a while ago).. As it turns out No urine sample needed and can stop the ear drops (which we had). Also she is having a renal scan today. A scan where they inject radioactive dye in her and 4 hours later take a special x-ray that will then show a better picture of her (smaller) arteries, to look for the narrowing. Also since the blood pressure still isn't down to where they would ideally like it they are going to do an angiogram either Tuesday or Wednesday.
We also spoke with Jennifer with the Dietary dept, about her eating etc. It looks like when we go home we will probably be going home with the feeding tube still in Ali and will continue to feed her that way until she gets her appetite back and begins eating on her own. This could change if she begins to eat by the time we leave, but is a good possibility since she still has no interest in food. Jennifer will put together a plan for that. We are going to switch to just feeding her at night instead of around the clock in preparation for the schedule we would be on when we go home. With the angiogram go forward by Wednesday I am assuming even the end of the week for going home will be pushed back a little more :( Not the best news, but again I would rather have her be here until we know for sure she is definitely on the track of getting better.
She has had a couple canine visiters the last couple of days - which she has liked. The weener dog (leroy) came today just at the right time, as something had upset Ali and she was in the middle of crying and being pretty upset. Leroy was able to calm her down pretty quickly :) Ai did have some occycodone this morning which she seemed to help her get comfortable, as for a bit she was pretty talkative, and now is relaxing watching Dora... We are just waiting for the renal scan today and then to see when the angiogram is going to be scheduled for.
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