Day 6
We finally made it our for a wagon ride! It took a little longer because some of the kidney doctors came in and we spoke to them for a bit. One of my sisters friends had mentioned Ali's symptoms were very similar to someone's she knew who had HSP (Henoch-Schonlein Purpura). I read about it and agreed, so I asked the doctors about it. They agreed some of the symptoms were similar but there were some that were very prevalent in HSP she didn't show and some of the tests they have done would of shown some indicators for it. They are increasing her frequency of captopril since it seems to work some, and if she responds well to that eventually they will change her dose to a longer lasting version that they will only give once or twice a day. Right now it seems to work and then wear off and her blood pressure goes back up. We are realizing it is going to be a long process to get Ali feeling back to her old self, we need to get her blood pressure down and keep it down and then her body will begin to adjust and get back to normal, but it is not gonna happen over night :( One of the doctors asked this morning if she ever seemed non responsive... And yes she does from time to time, can't get much out of her except a feeble nod or shake (or combination of) of her head. I had just thought maybe she was exhausted and or dopped up on a bunch of meds and not thought much of it really. Although now since the doctors were asking about it I will have to make sure to follow up and see why they were asking about it...
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